Are anonymized or aggregated genital measurement datasets available via data repositories like ICPSR, Dataverse, or OSF?

Checked on November 27, 2025
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Executive summary

There is no clear evidence in the supplied sources that large, openly downloadable repositories such as ICPSR, Dataverse (community instances), or OSF host openly accessible, anonymized or aggregated datasets specifically labelled as “genital measurement” datasets; ICPSR is a major social-science archive that restricts sensitive data and offers restricted-use access for potentially identifying information [1][2]. Dataverse implementations explicitly support storing anonymized datasets and private/anonymous preview workflows for sensitive or peer-review needs, but also show operational limits and past metadata-leak issues [3][4][5].

1. ICPSR: a large archive that treats sensitive health data as restricted

ICPSR is the world’s largest social science data archive and holds tens of thousands of studies and variables, but it treats data that could compromise participant anonymity as subject to restricted access or special controls; many campuses provide guidance on restricted-use files and membership-limited downloads [6][1][7]. That policy implies genital-measurement datasets—which can be sensitive and potentially re-identifiable—would likely be flagged for restricted use rather than freely released without controls [1][2]. Available sources do not mention a public ICPSR collection explicitly titled or indexed as “anonymized genital measurement” datasets.

2. Dataverse: designed to host anonymized data, but practical caveats exist

Dataverse as a platform explicitly supports storing anonymized datasets and workflows for restricted sharing (institutional Dataverse guides state anonymized files should be uploaded and that some downloads require permission) [3][8]. Dataverse features such as private/anonymous preview URLs let authors share draft datasets with reviewers without exposing identities, demonstrating the platform’s capacity for sensitive data sharing [4][9]. However, software-level incidents have shown metadata or HTML source can leak author names under some configurations, underscoring operational risk when claiming a dataset is fully anonymized on a public instance [5]. The provided materials do not list an indexed Dataverse collection of genital-measurement datasets.

3. OSF: not represented in supplied results — no evidence here

The search results you provided do not include OSF (Open Science Framework) documentation or listings. Therefore, available sources do not mention whether OSF hosts anonymized genital measurement datasets or how it treats such data. Do not infer OSF practices from Dataverse/ICPSR policies in the absence of cited coverage.

4. Clinical and academic studies exist, but repository deposits are not documented here

Medical and urology journals and systematic reviews routinely publish genital measurement results (examples: penile and pediatric genital anthropometry studies and meta-analyses listed in the results), showing research output exists that could underlie datasets [10][11][12][13]. Yet none of the supplied items show those studies’ raw measurement files deposited in ICPSR, Dataverse, or OSF in an openly discoverable way. For instance, SWAN and other cohort datasets are archived in ICPSR, but the ICPSR entry examples provided do not indicate inclusion of genital measurement files accessible without restriction [14]. The sources do not show a crosswalk that confirms raw genital-measurement data are publicly downloadable from the named repositories.

5. Practical and ethical reasons repositories limit access to these data

Repository policies highlighted in the supplied sources explain why genital-measurement datasets could be restricted: ICPSR flags data that might compromise anonymity and routes higher-risk populations to restricted-use access; Dataverse instances require anonymization and administrative workflows for sensitive data [1][3]. The presence of peer-review–oriented private URLs and anonymized preview workflows suggests repositories prefer controlled sharing to blanket public release [4][9]. These controls reflect both participant-protection ethics and legal/privacy risk management—factors that make public, aggregated genital datasets less likely to be freely available.

6. What a researcher should do next (based on cited procedures)

If you need such data, the cited guides indicate the practical route: search ICPSR’s catalog and follow restricted-use procedures or institutional membership access for datasets that are sensitive [15][1]; for Dataverse, contact the local Dataverse or data manager about anonymization and permission workflows and use private/anonymous preview features if peer-review access is required [3][4]. The supplied sources do not provide a direct dataset link, so the recommended step from these materials is inquiry to repository curators or study authors rather than assuming an open download is available.

Limitations: this assessment relies only on the provided search results; sources do not include OSF materials and do not list any explicit genital-measurement dataset holdings in ICPSR or Dataverse (not found in current reporting).

Want to dive deeper?
Do ICPSR, Dataverse, or OSF host datasets containing anonymized genital measurements for research?
What ethical and IRB requirements apply to sharing anonymized or aggregated genital measurement data?
Which controlled-access repositories or data use agreements are common for sensitive anthropometric datasets?
How do repositories de-identify or aggregate genital measurement data to meet privacy standards?
Are there published studies that cite ICPSR, Dataverse, or OSF as sources for genital measurement datasets and how are those datasets described?