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Pharmaceutical companies sharing de-identified IPD

Pharmaceutical companies' commitment to sharing de-identified individual participant data (IPD) for approved medicines upon request, and the gap between policy statements and actual data sharing practices.

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Jan 9, 2026

Which major pharmaceutical companies have published full individual participant datasets for recent blockbuster drugs?

Public commitments to share de‑identified individual participant data (IPD) exist across the industry — notably the PhRMA/EFPIA pledge effective 1 January 2014 — but audits and reviews show that concr...